“I’ve probably had at least a dozen kids out here who have Asperger’s,” says RedCliff therapist Roger Nelson.
Asperger’s is part of the autism spectrum of disorders. Roger says it’s often undiagnosed in teens who may exhibit other symptoms like rebelliousness, rigidity, or even a lack of empathy for others.
“People with Asperger’s often struggle picking up on social cues,” Roger explains. “On a social level, they march to their own drummer.”
Roger says symptoms can include struggling to read body language cues, trouble starting or maintaining a conversation, rigidity in schedules or routines, unusual facial expressions or postures, and difficulty understanding figures of speech. These are just a few of more than a dozen behaviors that can indicate Asperger’s.
With so many subtle, and not so subtle, symptoms, Roger says diagnosing Asperger’s can be difficult. “Asperger’s, on a scale, can be profound to extremely subtle. So many students have tiny bits of these behaviors. Some kids will fake control over these behaviors in order to get their parents off their backs and still function in their own little world.”
Roger says other teens simply can’t hide their behaviors. That’s when parents seek help.
“When parents and child are going to a counselor once a week, the counselor doesn’t see the child in a daily living situation. That therapist is going to develop a paradigm of the angry, rebellious child,” Roger explains. “When they see the child they start asking questions that might indicate bi-polar or depression or attention deficit or whatever.”
Roger says a once a week approach to therapy can result in misdiagnosis and even unnecessary medication. He says it’s not uncommon for students entering the RedCliff program to have been through similar scenarios.
But therapy at RedCliff offers an important advantage. “Because staff are with the student 24/7 they pick up on little cues others may missed. It makes treating the child and working with the family so much more effective.”
Ironically, Roger says most students with Asperger’s do not tend to be substance abusers. “If they try it, they usually don’t like it,” he says. “They may even try to fake it but they don’t like the response to feeling out of control.”
While they typically don’t like the feeling substance abuse can create, students with Asperger’s often present with similar behaviors.
Roger tells of a family who was devastated when their son was kicked out of a respected liberal arts school. School officials said the boy would often spend the night pacing outside his dorm. When officials or his parents questioned him about his behaviors he became angry, almost violent. His parents feared a secret drug habit may have been behind the strange behaviors.
After several weeks at RedCliff, Roger was able to piece together the Asperger’s pattern. As he laid out the clues for the student’s family, his parents were astounded. “We really had described their son to a T,” Roger says. “They had never even considered Asperger’s.”
In fact, he says, the rigid behaviors and irrational fears made these parents wonder if their son was schizophrenic.
“This boy was able to open up to his parents and say, ‘I know I have this problem. Sometimes I don’t understand what you’re saying and when I don’t understand, I’m afraid.’”
It was that fear that motivated his strange school behavior. When this student’s roommate would bring a girl to spend the night in their dorm, the student became terrified. Pacing around the building all night seemed to be the only logical course of action. Repeated questioning about his behavior by school officials and his parents only heightened his confusion and anger.
Roger says because Asperger’s does not respond to medication, students must learn to recognize their condition and develop ways to successfully live with it. Communication is a critical tool.
For each of his students with Asperger’s, Roger buys a special journal. He tells the student, “Remember, you have Asperger’s. Write down those times when you don’t understand people or when people don’t understand you.”
He teaches students, and their families, to use clear terminology and to remember that people with Asperger’s often have no sense of permanency. “They may ask to have a cookie on the ride home in the car, once they get in the driveway, and when they walk in the house. They’ll be reaching for the cookie and still want to know, once more, if it’s OK.”
He cautions parents not to be sarcastic because their child may simply be unable to tell the difference between that kind of comment and a clear statement. “A kid without permanency has to be told every time. They may not understand figures of speech because they take everything very literally.”
“Don’t assume anything,” he adds. “Everything has to be clearly spoken. They’re not going to catch subtle eye contact. It’s going to take a little bit of patience and a little bit of frustration – for parents and child – because the child is trying to cram all those subtle nuances that other people just naturally get into his brain.”
There is still no definite answer on what causes Asperger’s. “There seems to be some genetic predisposition,” Roger says, “but there isn’t any one clear predictor.”
In recent years, there has been some suspicion that Asperger’s and autism may be linked to childhood immunizations. “It’s a hotly debated topic right now,” Roger says. “Health professionals say it’s a ridiculous correlation. The only thing we know for sure is there has been a spike in the last 20 years.” He says there are also more people keeping track of Asperger’s cases than before. And therapists are beginning to have a better understanding of the syndrome than ever before, which may also lead to more people being diagnosed.
According to Roger, students with Asperger’s are not doomed to failure and frustration. “It’s not a situation where they can never improve their social workings or their social understanding,” he says.
In fact, he’s seen it first hand at RedCliff. He’s seen students explain, “I have Asperger’s. Sometimes I don’t understand you.”
“Instead of staying away from these students, the rest of the group tends to have compassion,” he says. “It’s really cool to see these students grow so dramatically.”
There are positive sides to this syndrome. Roger says as long as emotional security is provided, students generally do well in school because they tend not to rely so much on the approval of others. “Children with Asperger’s unfairly get a bad wrap as being the ‘dumb’ kids,” Roger notes. “Those children are more likely to have higher I.Q.’s than the average child.”
“They tend to be awesome employees,” he adds. “When you need somebody to do something and get it right, they do a great job every time.”
By the time they reach adulthood, many people with Asperger’s have spent years learning appropriate responses to social situations and their symptoms are often minimal.
“I tell my Asperger’s students everyone has issues,” Roger says. “Let’s just look at what your strengths are. Therapeutically, it might take them a little longer than most but don’t worry. We’re going to get there.”
Additional reading: “Freaks, Geeks, and Asperger’s Syndrome: A User Guide to Adolescence,” by Luke Jackson.